This collaborative project between consumers, their care partners, speech pathologists, the Wicking Dementia Research, and the Tasmanian Health Service (or Tasmanian Department of Health), aims to establish an effective, accessible, and sustainable support network for people with Primary Progressive Aphasia (PPA) and their care partners in Tasmania.
PPA is a dementia syndrome that affects the language networks of the brain, resulting in the gradual and pervasive decline of language. People with PPA and their care partners experience increased depression and stress and have unique support needs compared to other types of dementia, such as Alzheimer’s disease.
People who are affected have difficulty accessing information and support from healthcare professionals and peers, especially in rural and remote regions like Tasmania. The research project objectives are to understand priorities for PPA service planning and identify barriers that affect the implementation of PPA support groups. Implementation will include the co-development of strategies and setting up a support group in North West Tasmania.